When Molly was diagnosed with Down syndrome, I was confused and didn’t know what that meant for her future. Honestly, I didn’t really know that much about Down syndrome at all. The last eight months, I’ve learned a lot about my daughter and also myself.
So, today I’d like to share some of the things I’ve learned about Down syndrome, in hopes that you will also see that while it may be a scary world, it’s also a hopeful and positive one. Here are some great facts/statistics from the National Down Syndrome Society –
Did you know….?
- Down syndrome is the most common genetic condition. One in every 691 babies is born with Down syndrome. The most common form of Down syndrome is called Trisomy 21 , because it involves an extra copy of the 21st chromosome.
- Life expectancy for people with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today.
- Up to 50% of individuals with Down syndrome are born with congenital heart conditions. The majority of heart conditions in children with Down syndrome can now be surgically corrected with resulting long-term health improvements. (Editor note: Molly was in the minority and has no heart conditions.)
- A 35-year-old woman has about a one in 350 chance of conceiving a child with Down syndrome, and this chance increases gradually to one in 100 by age 40. At age 45 the incidence becomes approximately one in 30. (Editor note: I had a one in 850 chance.)
- Individuals with Down syndrome possess varying degrees of intellectual disabilities, from very mild to severe. Most people with Down syndrome have IQs in the mild to moderate range of intellectual disability.
- Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends and the community enable people with Down syndrome to develop their full potential and lead fulfilling lives.
While I’m no expert on the topic of Down syndrome, I’d love to chat with you if you have questions. What questions do you have? Do you have a personal experience with Down syndrome? Tell me….