A Look Back: The Day After Molly’s Birthday…. #DownSyndrome #SpecialNeeds

by Carrie with Children with 20 comments

Three years ago today, the day after Molly was born, the on-call pediatrician walked into my hospital room and told me that my daughter, not even twenty-four hours old, had “warning signs” of Down syndrome.

To say we were surprised was an understatement. I’m not even sure how to explain the emotions that came over me.  But, from that moment, my life took an entirely new path. Not necessarily the “right” or “wrong” path – just a turn that I wasn’t expecting or honestly, prepared to travel.

Month Old Daughter with Down Syndrome

In the days that followed, we were bombarded with doctor’s appointments – cardiologists, geneticists, ENT specialists and her typical pediatrician. We had no prior knowledge of Molly’s diagnosis and didn’t know anything about Down syndrome. We were solely left to rely on Molly’s doctors to teach us in the beginning.

When doctors continually prepare you for the worst…  it’s hard to see the sunshine.  It was probably the darkest days (and months) of my life.

However…. after a few months the sunshine arrived and it’s never left us.

Molly Water Table Time May 2013

Molly’s birthday, June 23rd is a day of celebration, as is every day with her in our lives – tons of laughter and smiles…. and pride. I’m so incredibly proud of her and all of the milestones she’s accomplished in the past three years.

The little girl who wasn’t given much hope in the beginning has turned into a silly and beautiful little girl.

Molly Natural Beauty

With such happiness each year on her birthday, June 24th is a very strange mix of emotions for me. Happiness that I have my precious Molly, but also a little bit of sadness as I relive June 24, 2010 over and over in my head each year.  It’s so strange to think about it all.  I can tell you every single detail of those doctor’s words and the minutes and days that followed.

It’s truly the day my life changed forever.

So, as another June 24th is now coming to an end, I do feel a bit of uneasiness.  However, I’m choosing to be happy and thankful for my precious daughter.  And her extra chromosome.

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    Comments

  • Jenny from Mommin' It Up


    Loved every word of this post. I had a similar type of day when my daughter was 4. But now, lots of sunshine, too.

    • Carrie with Children


      Thank you, Jenny! I’m so glad to hear you are seeing sunshine now too! xo

  • Bonnie


    Beautiful post, Carrie. Just like both of your girls. xoxo

  • Cassie


    Carrie I love your honesty! I admire your strength! And I share your story with as many people as I can because of that honesty and strength. Happy Birthday Molly!

  • Jen


    Happy happy birthday to a sweet ball of sunshine! It’s hard to look back, but what a remarkable journey. ((hugs)) Thanks for sharing.

    • Carrie with Children


      Thank you, Jen. It’s definitely hard to look back on, but oh we’ve come so far around our house! **hugs**

  • Cassandra Eastman


    Such a heartwarming post, thanks for sharing! Happy Birthday to your beautiful Molly! She is so blessed to have you for a mom!

    • Carrie with Children


      Thank you so much for reading, Cassandra. I truly appreciate it.

  • Tricia


    I feel the same way each year as Kamdyn’s birthday approaches.

  • Sonya Morris


    Happy Birthday Molly!

  • Amanda


    I understand so much. Our children have different challenges ahead of them, but they definitely were put in our lives to teach us to see the world differently. Happy Birthday sweet girl!

    • Carrie with Children


      I couldn’t agree with you more, Amanda. Molly has taught me so much. Thanks for reading.

  • Pam King


    I love reading your posts of both Maggie and Molly. Molly is so blessed to have such an awesome family support team. She has such a bright future she’s going to need shades Bl! Thank you for sharing it has helped me in learning more about down syndrome.

    • Carrie with Children


      Thank you, Pam! I’m so glad to know my stories have helped! Hope to see you soon

  • Martha from Drop-It-Not


    Carrie,

    I have always love your story and the way you choose to handle it with love, happiness, and sunshine. Perfect!!!

    Thanks for sharing.

    • Carrie with Children


      Hi Martha – Thank you so much for reading. I appreciate your kind words!

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