One Thing The Parent of a Child with Special Needs Wants You To Know

by Carrie with Children with 4 comments

As the mom of a child with Down syndrome, my family’s world and what we see as ‘reality’ may be different than others. This past weekend was filled with activities – a soccer game, two birthday parties and the usual running errands and of course, a trip to the playground.

Molly Driving

She’s a Typical Kid.. With an Extra Chromosome

And with each of those events, we met knew families and were reacquainted with old friends. When we are in public, I’ve never made a big deal out of Molly having Down syndrome. She’s a typical kid… with an extra chromosome. She gets no special treatment. Ever.

I’m not looking for sympathy and I certainly don’t want anyone to feel bad for us, and especially not for Molly. However, I don’t want Molly’s disability to be the pink elephant in the room either.

Molly and Tinker Bell Watermarked

Don’t Be Afraid to Ask Questions

The one thing I want you to know is that it is always okay to ask questions. Whether it is about Molly specifically, Down syndrome, the special needs community, about her school – all of it. Never be afraid to talk to me. Asking questions shows that you care.

Before Molly was born, I knew absolutely nothing about Down syndrome – it was quite a crash course after her birth.  In the beginning, yes – I used to cry talking to people about Molly, but now – I can’t stop talking about her. It doesn’t have to be an awkward conversation, I get excited when people ask to talk about Molly. She’s an incredible child doing pretty awesome things. And she’s pretty silly too.

Molly and Maggie Silly Faces

Everything is Okay

If you meet a family with a child that has special needs. Treat them like you would any other family. If you have questions, ask them. I’ve never thought of it as nosy, but caring. Maybe I’m wrong – but that’s how I see it.

What do you think? 





  • Amanda Van Wagenen

    Great post, and I totally agree! I would rather people ask me questions than stare at my kid because he is being different.

    • Carrie with Children

      Thanks, Amanda. I agree with you, I’m always happy to answer questions.

  • Mary McLean

    Terrific post ! Molly is wonderful and lots of fun to be around. A great kid !!!

  • Cam Brown

    Wow, they’ve grown so much. Such little cuties!!