Things To Know About Down Syndrome – A Mom’s Perspective

by Carrie with Children with 13 comments

I’m starting to look forward to the last Monday of every month – just so I can share more statistics and facts about Down syndrome.  Each month when I start researching for facts to share, I always learn something that I didn’t know too!

Here are some great facts/statistics from the National Down Syndrome Society

  • A few of the common physical traits of Down syndrome are low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.
  • People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer’s disease, childhood leukemia, and thyroid conditions.  However, many of these conditions are now treatable, so most people with Down syndrome lead healthy lives. (Editor note: Molly’s bloodwork recently came back negative for leukemia.)
  • Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends and the community enable people with Down syndrome to develop their full potential and lead fulfilling lives.
  • Children with Down syndrome have been included in regular academic classrooms in schools across the country. In some instances they are integrated into specific courses, while in other situations students are fully included in the regular classroom for all subjects. The current trend in education is for full inclusion in the social and educational life of the community.


While I’m not an expert, I’d love to try and answer any questions you may have about the road ahead for our precious Molly. I want this to be a place where you feel comfortable asking questions.  No question too big or small.  What would you like to know?


  • Pam King

    That is great news Molly does NOT have the heart issues and her bloodwork is negative for leukemia.
    I am learning alot about Down Syndrome from your blog.
    Thank you
    Molly is one lucky little girl to have you as a mom.

    • Carrie with Children

      It is super news, Pam! She’ll continue to get tested for a few years – but so far, so good!

      I’m so glad you are learning a lot – I appreciate you reading! 🙂

  • Nichol

    My sister has always come back negative which is great. Be sure to have her ears checked often, my sister is almost deaf in one ear now. She also has two holes in her heart, but has never needed surgery, thank goodness. Love the photo of her too cute.

    • Carrie with Children

      That’s great your sister’s tests have always come back negative too! The ears are our troublesome area – her little ear canals are super tiny. She reacts to soft sounds and loud sounds very well though. Her doctor’s are keeping a close watch on her ears.

      Thanks for reading, Nichol! <3

  • LeeAnn

    What a great picture! She’s so cute! And great news about Molly’s blood work coming back negative for leukemia. From what I can remember from your other posts and our chats, she doesn’t seem to have any of the “typical” health issues, right?

    I hope you and your family had a great Easter weekend!

    • Carrie with Children

      Thank you, LeeAnn! And you are right – she has no abnormal health issues! So far, so good for my little tiny Toot.

      Easter weekend was fun and I’ve been trying to recover all day! 🙂 Hope you all enjoyed your day too!

  • A Mommy in the City

    Thank you for sharing these statistics every month. I love learning about this on your blog. Thanks for being such a great advocate Carrie!

    • Carrie with Children

      I’m so glad that everyone enjoys this series – I do too! 🙂 I appreciate you always reading!

  • Kimi

    One question: When are you guys coming down so we can meet her and Maggie Moo???

    • Carrie with Children

      I know!! 🙁 I’ve been trying to get Hubs to figure out a time/date for months now! I was hoping to get there before school got out, but doesn’t look like that’s going to happen!

  • Melinda

    I’m so happy you have such a healthy beautiful little girl. I was intrigued by this post (it’s my first on your site) because a friend of mine from high school has a daughter with Down’s. I would love to learn more. Thank you for sharing this information.

  • Kristi

    What a beautiful little girl you have!!! Thanks so much for sharing this information.

    Following you via GFC from the I Love My Online Friends blog hop!

    • Carrie with Children

      Hi Kristi – Thank you so much for your nice words about our Molly! We are so proud of her! I appreciate you following along with my site!